newsCF drug delay causing 'unnecessary and irreversible damage'The mother of a 10-year-old girl denied access to a revolutionary drug for Cystic Fibrosis has called on the health minister to intervene in a dispute between the manufacturer and the HSE.
news'It all comes down to money': 35 children in need of CF drug 'left in limbo'Cystic Fibrosis Ireland say the don't have confidence in the NCPE's capacity to judge drug reimbursement for the children
newsCystic fibrosis patients in limbo as pharma company and HSE argue over drug price dealYoung children in need of a revolutionary drug for cystic fibrosis (CF) have been left in limbo as the HSE and the pharmaceutical company argue over the extension of an existing drug-price deal.