Majority of cystic fibrosis patients have seen condition worsen

The vast majority of Irish people with cystic fibrosis have seen their condition worsen over the past year, a new study shows.

More than one third of those living with CF spend at least three hours a day completing their treatment, according to a survey conducted by Cystic Fibrosis Ireland in advance of the charity’s National Awareness Week which begins on Monday.

“Our survey shows 89% of adults with cystic fibrosis have had an exacerbation, a worsening of their condition, requiring treatment in the past 12 months,” said CEO Philip Watt who called on the Government to make a new drug, Orkambi, available to those with cystic fibrosis.