CF charity renews call for deal on life-saving drug

Cystic Fibrosis Ireland (CFI) has reiterated its call to Government to swiftly conclude discussions with the manufacturer of a life-changing drug so that more than 500 patients can potentially benefit from the treatment.

The plea came at the launch of CF National Awareness Week and nine months into the wait for a decision on whether the State will reimburse Vertex Pharmaceuticals for the cost of Orkambi, originally set at c€159,000 per patient per annum.

CFI is also hoping for a favourable decision on requests for an extension of the State’s reimbursement of Kalydeco, another Vertex drug.