Cystic fibrosis patients reveal hopes for Orkambi

Cystic fibrosis campaigner Jillian McNulty is hopeful, for the first time, that her parents will not have to bury another child — they have already buried two.

Jillian, 41, from Longford, campaigned tirelessly for free access to Orkambi and Kalydeco for those living with CF.

On Tuesday evening it was announced that a deal had been struck between the State and the manufacturer of the drugs.