'It all comes down to money': 35 children in need of CF drug 'left in limbo'
'The girls are on high-tech drugs, they are on machines that have to be replaced,' said Gráinne Uí Luing of her daughters Fiadh and Caoimhe. File picture: Shane O'Neill
Cystic Fibrosis Ireland said they are no longer sure the HSE can negotiate fairly with a pharmaceutical company on the cost of revolutionary drugs for young children.
Some 35 children in need of a specialised drug Kaftrio have been in limbo since May as the HSE and pharmaceutical company Vertex argue over extending a drug-price deal to include more health conditions.
