Concerns have been raised over the availability of services and appropriate infrastructure if new laws on organ donation are passed.

Pharmaceutical firm Vertex Ireland’s revenues soared last year on the back of the company's deal with the HSE on the groundbreaking blockbuster cystic fibrosis drug Orkambi.

The focus must be on improving rates of family consent when providing an opt-out system of organ donation, the Irish Kidney Association has urged.

Dublin City Council has given full planning permission for the three-storey unit that aims to provide 20 patient rooms for 160 adults.

Cystic fibrosis patients and their families are calling on the Government to honour its pledge to give them new hospital facilities, warning that the cost of the project is rising as the delay drags on.

Alice Ward says it's frustrating that health system is not doing all it can to support her when she is doing all she can to beat cystic fibrosis.

Cork woman Kate Walsh won’t let cystic fibrosis stop her from living a full and active life, she tells Karen Murray

Health Minister Simon Harris says he will work with Cystic Fibrosis Ireland to establish a dedicated CF inpatient unit at Dublin’s Beaumont Hospital.

Cystic fibrosis campaigner Jillian McNulty is hopeful, for the first time, that her parents will not have to bury another child — they have already buried two.

Cystic Fibrosis Ireland has welcomed the long-awaited deal completed by the HSE and drug manufacturer Vertex to make a wonder CF drug available.

A deal has been done between the makers of the cystic fibrosis drug Orkambi and two other drugs and the Health Service Executive.

Ireland has the highest levels of Cystic Fibrosis in the world.

Cystic Fibrosis Ireland (CFI) has reiterated its call to Government to swiftly conclude discussions with the manufacturer of a life-changing drug so that more than 500 patients can potentially benefit from the treatment.

More than 1,200 people in Ireland suffer with Cystic Fibrosis, with an Awareness Week being launched today that aims to raise more than €100,000.

A father has made an emotional plea outside Leinster House for his little boy to be given a groundbreaking drug to treat cystic fibrosis.

The Government is being today urged to provide better treatment for the estimated 300,000 Irish people with rare diseases.

The health minister has written to his ministerial counterparts in England, Scotland, Canada and Australia proposing they work together to access a new cystic fibrosis wonder drug at a “cost-effective price”.

Cystic fibrosis campaigners have expressed dismay and anger after it emerged that a drug labelled a “game-changer” may not be funded by the HSE.

The National Centre for Pharmaeconomics (NCPE) is seeking a five-fold reduction in the cost of the cystic fibrosis (CF) drug Orkambi.

The vast majority of Irish people with cystic fibrosis have seen their condition worsen over the past year, a new study shows.

Don’t dash the hope people with cystic fibrosis now have for a better quality of life, Ireland’s newly elected politicians have been urged.

Cystic Fibrosis Ireland (CFI) has come under fire from another CF charity for making public pronouncements about the dire state of paediatric facilities at Cork University Hospital (CUH) while failing to mention that a major upgrade is currently under way.

Hundreds of families are waiting more than a year to access genetic services in Ireland, it has emerged.

The Government has been urged to assess a new drug that treats the underlying cause of cystic fibrosis.

When Lorraine O’Neill’s daughter Mia was diagnosed with Cystic Fibrosis at five months old, neither she nor her partner, Terry Fay, panicked.

A dad whose son died two months ago helped health bosses launch Ireland’s first rare disease plan yesterday.

The head of a cystic fibrosis charity has called for the appointment of an independent expert to help resolve a row over bed designation for CF patients at a Cork hospital.

Cystic Fibrosis Ireland (CFI), the national charity, has met with the hospital management, clinicians and the HSE and has urged that a speedy resolution is found to end the dispute that is holding up the development of a new inpatient facility in Cork University Hospital.

A patients’ lobby group says negotiations on the price of a life-changing cystic fibrosis drug must not be allowed to drag on.

Some 18 medical research charities have weighed into the controversy surrounding the Government’s decision to appoint as its chief scientific advisor the man who also heads up its science funding agency.

Fear of being sued by next-of-kin means surgeons will not remove organs from deceased donors against the family’s wishes even if Ireland introduces an “opt-out” system of donation, it has been claimed.

A dedicated unit to treat cystic fibrosis (CF) patients has been described as a tribute to campaigners who died before it was built.

A HANDHELD inhaler could revolutionise how cystic fibrosis (CF) patients take life-saving antibiotics.

A new hand-held inhaler designed to revolutionise how cystic fibrosis (CF) sufferers take life-saving antibiotic medicine has been launched.

THE Cystic Fibrosis Association of Ireland has welcomed the introduction of newborn screening for Cystic Fibrosis (CF).

A LEADING cystic fibrosis campaigner whose personal circumstances led to a public outcry over continuing delays to vital treatment facilities, has lost her fight for life.

THE Health Service Executive (HSE) is next week to announce details of €10.5 million plans for providing new facilities in the mid-west for cystic fibrosis and Parkinson’s disease patients.

THE Medical and Scientific Council of the Cystic Fibrosis Association of Ireland is made up of healthcare professionals and scientists who look after children and adults with cystic fibrosis in the Republic.

TÁNAISTE Mary Coughlan has insisted that the Government is committed to opening the delayed cystic fibrosis unit at St Vincent’s Hospital in Dublin.

WITH 30 cystic fibrosis sufferers on a waiting list for double lung transplant, the Cystic Fibrosis Association of Ireland (CFAI) had called for a state-sponsored programme to raise organ donation awareness.

ACTIVITY on a neo-Nazi internet-based forum has dramatically increased since the killing of 15-year-old Nigerian boy Toyosi Shitta-bey on Good Friday.