‘Bittersweet’ day for grieving father as he helps launch plan for rare diseases

A dad whose son died two months ago helped health bosses launch Ireland’s first rare disease plan yesterday.

It was a “bittersweet” day for Tony Heffernan — it was also his son Liam’s sixth birthday.

After 2+yrs work (for free) & on #LittleLiamo s 6th birthday. Its finally here. #raredisease #plan #Ireland http://t.co/zxEBQm0Rs2

— Tony Heffernan a DAD (@BeeForBattens) July 3, 2014