‘Bittersweet’ day for grieving father as he helps launch plan for rare diseases

A dad whose son died two months ago helped health bosses launch Ireland’s first rare disease plan yesterday.

Fri, 04 Jul, 2014 - 01:00

Evelyn Ring

It was a “bittersweet” day for Tony Heffernan — it was also his son Liam’s sixth birthday.

After 2+yrs work (for free) & on #LittleLiamo s 6th birthday. Its finally here. #raredisease #plan #Ireland http://t.co/zxEBQm0Rs2
— Tony Heffernan a DAD (@BeeForBattens) July 3, 2014

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Courts Place: Ireland Place: Dingle Place: Kerry Person: Tony Heffernan Person: Liam Person: Heffernan Person: Health Minister Person: James Reilly Person: Reilly Person: Mary Person: Saoirse Person: Chairman Person: Philip Watt Organisation: National Rare Disease Taskforce Organisation: Heffernans Organisation: Saoirse Foundation Organisation: Kerry County Council Organisation: HSE

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‘Bittersweet’ day for grieving father as he helps launch plan for rare diseases

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‘Bittersweet’ day for grieving father as he helps launch plan for rare diseases

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