Patients’ group wants quick action on new CF drug

A patients’ lobby group says negotiations on the price of a life-changing cystic fibrosis drug must not be allowed to drag on.

Philip Watt, chief executive of Cystic Fibrosis Ireland, called on the HSE and drugs company Vertex to agree a fair price on the drug, Kayldeco, as soon as possible.

“While we accept the right of the HSE to get as good a deal on the price of this drug as possible, what our members will not accept are significant delays in making this drug available,” he said.