Patients’ group wants quick action on new CF drug

A patients’ lobby group says negotiations on the price of a life-changing cystic fibrosis drug must not be allowed to drag on.

Patients’ group wants quick action on new CF drug

Philip Watt, chief executive of Cystic Fibrosis Ireland, called on the HSE and drugs company Vertex to agree a fair price on the drug, Kayldeco, as soon as possible.

“While we accept the right of the HSE to get as good a deal on the price of this drug as possible, what our members will not accept are significant delays in making this drug available,” he said.

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