Each week we profile one of the runners taking part in the ‘Irish Examiner’ Cork City Marathon this June

A charity set up by the father of two children who died of a rare and fatal disease is the subject of a preliminary review by the charities’ watchdog on foot of complaints about governance and an alleged theft.

Health insurance provider Aviva is in hot water after sending insensitive material to the parents of two deceased children.

A proven Iron Man is training to become a Hard Man — all for a good cause.

A heartbroken mother yesterday spoke of the "absolute privilege’’ she and her husband had of being the parents of two children who died of the extremely rare Battens disease.

Liverpool legend Jamie Carragher has been signed — lining out this time for an Irish charity.

It is unlikely that Tony and Mary Heffernan’s son, Liam, will live long enough to see the opening of Ireland’s first rare disease respite centre, that his loving parents have named after him.

Calls are being made for builders, trades people and manufacturers to help build Ireland's first ever National Respite Centre for children with rare diseases and their families.

The condition of a young boy who has a rare and usually fatal disease is deteriorating.

The parents of a three-year-old Kerry boy who has Batten disease have been told the pioneering surgery he had in New York last year is not going to be a cure.

HAVING lost a daughter, Tony and Mary Heffernan feared they would never see the day when their gravely-ill little boy could live a normal life, let alone that they would see a medical miracle unfold.

DOCTORS treating a two-year-old Kerry boy who underwent pioneering brain surgery in a New York hospital earlier this month have described his recovery as “awesome”.

A two-year-old Irish boy is set to become the world’s youngest child to undergo pioneering brain surgery.

A TWO-YEAR-OLD Kerry boy will become the youngest child in the world to undergo pioneering brain surgery to combat a fatal disease.

A YOUNG Kerry boy suffering from a rare condition, Battens disease, has been invited to the US for assessment of a medical treatment trial which could save his life.

A DOLL held closely by her mother, and a colourful sunflower-shaped toy in the hands of her father, symbolised the innocent joy a little girl brought to people’s lives.

A FIVE-YEAR-OLD Kerry girl, who is battling the usually fatal Battens Disease, is being treated in Kerry General Hospital, Tralee after a number of difficult weeks in Temple Street Children’s Hospital, Dublin.

THEY left Ireland for the US last week with a possible cure for their critically ill daughter within reach.

Zhu Rongji, Premier of the People’s Republic of China, will this weekend become the first visiting foreign dignitary to be accommodated at Farmleigh, the Government-owned stately home.