Surgery hasn’t cured boy, 3, of Batten disease

The parents of a three-year-old Kerry boy who has Batten disease have been told the pioneering surgery he had in New York last year is not going to be a cure.

Surgery hasn’t cured boy, 3, of Batten disease

However, Tony and Mary Heffernan yesterday said they would continue to leave no stone unturned for their son, Liam, and are hoping for another treatment trial in Los Angeles next year.

The family yesterday flew from Dublin to New York where he will undergo further assessment at the Weill Cornell University Hospital.

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