Organisation: Kalydeco

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

business

Revenues surge at cystic fibrosis drug firm

Pharmaceutical firm Vertex Ireland’s revenues soared last year on the back of the company's deal with the HSE on the groundbreaking blockbuster cystic fibrosis drug Orkambi.

general

Cork woman describes living with cystic fibrosis

news

Minister to work with CF group to establish dedicated hospital unit

news

New cystic fibrosis facilities at CUH ‘no more than the kids deserve’

news

Cystic fibrosis patients reveal hopes for Orkambi

news

Cystic Fibrosis Ireland welcomes medication deal

HSE agrees deal with makers of cystic fibrosis drug Orkambi

A deal has been done between the makers of the cystic fibrosis drug Orkambi and two other drugs and the Health Service Executive.

Tue, 11 Apr, 2017

CF charity renews call for deal on life-saving drug

Cystic Fibrosis Ireland (CFI) has reiterated its call to Government to swiftly conclude discussions with the manufacturer of a life-changing drug so that more than 500 patients can potentially benefit from the treatment.

Mon, 20 Mar, 2017

Cystic fibrosis drugs deal expected in weeks

A father has made an emotional plea outside Leinster House for his little boy to be given a groundbreaking drug to treat cystic fibrosis.

Thu, 02 Mar, 2017

Cystic Fibrosis drug has weekly sales of €460,000

Pharmaceuticals company Vertex had weekly sales in Ireland of almost €460,000 in 2015 for its cystic fibrosis drug Kalydeco.

Thu, 26 Jan, 2017

Cystic fibrosis drug company hits back over cost claims

The manufacturer of a cystic fibrosis drug has cranked up the pressure on the Government and the HSE, accusing the latter of not offering any guidance on the decision-making criteria for any possible purchase of Orkambi and claiming “misinformation” was causing undue fear and confusion among patients.

Fri, 02 Dec, 2016

Patients’ group wants quick action on new CF drug

A patients’ lobby group says negotiations on the price of a life-changing cystic fibrosis drug must not be allowed to drag on.

Tue, 22 Jan, 2013

CF drug may cost €230k per patient

Concerns have been raised that a new wonder drug for cystic fibrosis (CF) patients could be prohibitively expensive as manufacturers are seeking to charge up to €230,000 per patient for a one year supply of the pills.

Thu, 08 Nov, 2012