A deal has been done between the makers of the cystic fibrosis drug Orkambi and two other drugs and the Health Service Executive.

Cystic Fibrosis Ireland (CFI) has reiterated its call to Government to swiftly conclude discussions with the manufacturer of a life-changing drug so that more than 500 patients can potentially benefit from the treatment.

Paying up-front for medical research would encourage innovation and end costly monopolies by allowing generic competition to flourish, according to Diarmaid McDonald and Dr Kieran Harkin

A father has made an emotional plea outside Leinster House for his little boy to be given a groundbreaking drug to treat cystic fibrosis.

Cystic fibrosis sufferers and supporters will converge on the Dáil today to protest at the delay in striking a deal with the manufacturers of a life-changing drug that treats the underlying cause of the disease.

Health Minister Simon Harris says he is not going to be “bullied or intimidated” or have taxpayers extorted by a drug company that holds the fate of people with cystic fibrosis in their hands.

Taoiseach Enda Kenny has accused the maker of a life-saving cystic fibrosis drug of “ripping off the taxpayer” amid growing concern over the “excessive” price tag it is demanding.

Michael Twomey, a 44-year-old father to a seven-year-old boy, has the gene mutation that Orkambi was designed for, but has not been able to access the drug.

The health minister has written to his ministerial counterparts in England, Scotland, Canada and Australia proposing they work together to access a new cystic fibrosis wonder drug at a “cost-effective price”.

The manufacturer of a drug aimed at cystic fibrosis sufferers has said it has still not received an update from the HSE over whether or not funding for it will be recommended.

There are calls for the company behind a Cystic Fibrosis drug to put their patients before profits.

Cystic fibrosis campaigners have expressed dismay and anger after it emerged that a drug labelled a “game-changer” may not be funded by the HSE.

Eoin Ó Broin hadn’t read the memo: How to retrieve potentially embarrassing emails after accidentally clicking “send”.

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The National Centre for Pharmaeconomics (NCPE) is seeking a five-fold reduction in the cost of the cystic fibrosis (CF) drug Orkambi.

Cystic Fibrosis Ireland has expressed dismay at a recommendation to the HSE that a drug to treat the condition is not “cost-effective”.

A new drug could make a dramatic difference to one patient with cystic fibrosis, writes Ailin Quinlan

The word ‘Orkambi’ means nothing to most people. To anyone who has cystic fibrosis, it’s a pot of gold at the end of therainbow.