Cystic fibrosis campaigner Jillian McNulty is hopeful, for the first time, that her parents will not have to bury another child — they have already buried two.

Cystic Fibrosis Ireland has welcomed the long-awaited deal completed by the HSE and drug manufacturer Vertex to make a wonder CF drug available.

Cystic Fibrosis Ireland (CFI) has reiterated its call to Government to swiftly conclude discussions with the manufacturer of a life-changing drug so that more than 500 patients can potentially benefit from the treatment.

Cystic fibrosis sufferers and supporters will converge on the Dáil today to protest at the delay in striking a deal with the manufacturers of a life-changing drug that treats the underlying cause of the disease.

The National Centre for Pharmaeconomics (NCPE) is seeking a five-fold reduction in the cost of the cystic fibrosis (CF) drug Orkambi.

There was widespread suspected sexual abuse within the foster family a child was sent to after he was allegedly raped by his father and forced to have sex with his mother.

Cork University Hospital (CUH) now has the “cleanest hospital rooms that exist in healthcare worldwide” within its new cystic fibrosis (CF) ward, effectively removing the threat of cross infection to patients.

The standard one-year warranty on 10 PlayStations bought for the entertainment of children hospitalised with Cystic Fibrosis (CF) is in danger of expiring before the ward for which they were purchased even opens.

Catherine Shanahan examines the hurdles charity Build4Life has faced in ring-fencing beds for CF patients at Cork University Hospital

Work is due to get underway on the construction of a long-awaited 20-bed inpatient respiratory ward at Cork University Hospital, funded by Munster-based cystic fibrosis (CF) charity Build4Life.

A Munster-based charity which has raised €3.6m towards improving outcomes for cystic fibrosis (CF) patients at Cork University Hospital (CUH) has been honoured for its efforts.

Most kids bat off minor bugs fairly effortlessly but not Fíonn Flannery O’Riordan.

The stand-off between a cystic fibrosis charity and a Cork hospital over the ringfencing of beds means work is yet to begin on building a ward which should be complete by now.

A mother who went into politics in a bid to improve the life of her young child got the news she desperately wanted yesterday — that a cystic fibrosis wonder drug will be available to patients in Ireland from next month.

Screening of embryos for genetic diseases such as cystic fibrosis (CF) is being made available in fertility clinics in Cork and Dublin for the first time — with a Dublin clinic offering screening for Down’s syndrome.

Concerns have been raised that a new wonder drug for cystic fibrosis (CF) patients could be prohibitively expensive as manufacturers are seeking to charge up to €230,000 per patient for a one year supply of the pills.

Max McGuire’s coming-of-age film Foreverland shows life with cystic fibrosis is challenging and uplifting, reports Joe McNamee

A dedicated unit to treat cystic fibrosis (CF) patients has been described as a tribute to campaigners who died before it was built.

IN the first days of Seán’s life, his parents, Joe and Sandra Kavanagh, hoped he had Hirschsprung’s disease. A condition of the large intestine, it causes constipation.

A SHANNON man is to cycle across the country throughout the night to make the starting line for this year’s Dublin City Marathon to run 26 miles.

THERE is one possible solution to the Government’s difficulty in providing adequate funding for special needs education.

PARENTS of children with cystic fibrosis (CF) must be encouraged to use advances in tele-health to monitor their development at home, Fine Gael’s Áine Collins said yesterday.

DARRAGH CROWLEY believes the Health Service Executive’s broken promise on having a new cystic fibrosis patients’ facility at St Vincent’s Hospital by 2010 will cost lives.

THIRTY people with cystic fibrosis (CF) died last year, the highest death toll from the disease in 14 years.

A CAMPAIGN has been launched to fund the construction of Ireland’s first dedicated cystic fibrosis unit at Cork University Hospital (CUH).