A final deal for the HSE to get access to Cystic Fibrosis drug Orkambi could happen this week, according to the Health Minister.

The HSE will today enter the 'final stages' of talks to agree the price of a major new drug for Cystic Fibrosis.

A father has made an emotional plea outside Leinster House for his little boy to be given a groundbreaking drug to treat cystic fibrosis.

Cystic fibrosis sufferers and supporters will converge on the Dáil today to protest at the delay in striking a deal with the manufacturers of a life-changing drug that treats the underlying cause of the disease.

Health Minister Simon Harris says he is not going to be “bullied or intimidated” or have taxpayers extorted by a drug company that holds the fate of people with cystic fibrosis in their hands.

The Director General of the Health Service Executive says it is too early to say if new talks will see Orkambi provided for cystic fibrosis patients.

Vertex has responded to calls from the HSE with a view to re-engage on the pricing of cystic fibrosis drug Orkambi.

Taoiseach Enda Kenny has accused the maker of a life-saving cystic fibrosis drug of "ripping off the taxpayer".

The health minister has moved to re-assure cystic fibrosis patients that they may still get access to a new drug - Orkambi.

The word ‘Orkambi’ means nothing to most people. To anyone who has cystic fibrosis, it’s a pot of gold at the end of therainbow.

The Government has been urged to assess a new drug that treats the underlying cause of cystic fibrosis.