'Somebody is going to die untreated in Ireland': Families protest for Spinraza drug to be made available

Anton Mannering from SMA Ireland was with a number of families who pleaded with politicians to make Spinraza available for around 25 children with the muscle-wasting disease, spinal muscular atrophy.

Will a child have to die before others get a potentially life-changing therapy?

That was a question a parent of a boy with a rare genetic condition asked politicians.