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Spinraza

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

HSE approves use of Spinraza drug
HSE approves use of Spinraza drug

The medication is used mostly by children with Spinal Muscular Atrophy (SMA).

Tue, 11 Jun, 2019

'Somebody is going to die untreated in Ireland': Families protest for Spinraza drug to be made available
'Somebody is going to die untreated in Ireland': Families protest for Spinraza drug to be made available

Anton Mannering from SMA Ireland was with a number of families who pleaded with politicians to make Spinraza available for around 25 children with the muscle-wasting disease, spinal muscular atrophy.

Thu, 28 Feb, 2019

Cork mother in tearful plea for son as HSE called on to fund life-changing drug
Cork mother in tearful plea for son as HSE called on to fund life-changing drug

A mother pleaded with politicians from all parties in the Dáil to fund a potentially life-changing therapy for her young son.

Thu, 28 Feb, 2019

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