Organisation: CF Ireland

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

<p>Tadhg Griffin with his father Jonathan Griffin in support of neighbours during a protest calling for Government approval for Kaftrio in September 2022. The drug was since approved for children aged 6-11. Picture: Gareth Chaney/ Collins Photos</p>

news

'Miracle' CF drug may be available to small children in coming months

Kaftrio was recently licensed in America for children aged 2-5 years, and campaigners are hoping the same will happen in Ireland soon, if the drug is deemed safe.

<p>Philip Watt addresses a protest over exclusion of children from access to the drug Kaftrio. Picture: Gareth Chaney/Collins Photos</p>

news

Children with cystic fibrosis live longer as treatment advances

<p>'The girls are on high-tech drugs, they are on machines that have to be replaced,' said Gráinne Uí Luing of her daughters Fiadh and Caoimhe. File picture: Shane O'Neill </p>

news

'It all comes down to money': 35 children in need of CF drug 'left in limbo'

gaa

Bishopstown selector Kevin Driscoll on living with cystic fibrosis: ‘There was a period where I didn’t really like going to matches’

general

Fighting to breathe: New cinema advert to highlight struggles of cystic fibrosis sufferers

news

CF Ireland urges Govt to approve orkambi funding and improve services for sufferers

Ireland has 'highest incidence of Cystic Fibrosis in the world'

More than 1,200 people in Ireland suffer with Cystic Fibrosis, with an Awareness Week being launched today that aims to raise more than €100,000.

Sun, 19 Mar, 2017

Simon Harris seeks CF drug alliance

The health minister has written to his ministerial counterparts in England, Scotland, Canada and Australia proposing they work together to access a new cystic fibrosis wonder drug at a “cost-effective price”.

Wed, 30 Nov, 2016

Rugby stars lend their strength to cystic fibrosis 'Strawfie' awareness campaign

Simon Zebo, Conor Murray, Keith Earls and Paul Warwick were among thousands who threw their support behind the ‘Breathe With Me’ Strawfie Challenge during National Cystic Fibrosis Awareness Week.

Thu, 21 Apr, 2016

Family keeps calm despite Mia’s Cystic Fybrosis diagnosis

When Lorraine O’Neill’s daughter Mia was diagnosed with Cystic Fibrosis at five months old, neither she nor her partner, Terry Fay, panicked.

Thu, 09 Apr, 2015