Spina Bifida

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Spina Bifida

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

<p>Dollceanna Carter died in September 2022 with her death the subject of a coroner’s review and a serious incident investigation by Children’s Health Ireland.</p>

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Review into death of Dollceanna Carter after Temple Street spinal operation still not complete

Children’s Health Ireland spokeswoman said 'the review is ongoing', with further information available

<p>Ben Mellis with his mum Michelle Sylvester at home in Carrigtwohill, Cork. Ben receives much of his treatment in Cork and, in some circumstances, in his own home. Picture: Dan Linehan</p>

munster

'When you have a disability, it doesn’t stop you doing what you like' says Ben, 10, from Cork

<p>Hiqa published terms of reference on Friday which specify assessment will take place of the governance, leadership and management arrangements at CHI around use of surgical implants and implantable medical devices.</p>

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Health watchdog Hiqa to review use of springs in spinal surgeries at Temple Street Hospital

CC SMITHFIELD CELEBRATIONS

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More families of children with spina bifida considering legal action to get medical records

Bereaved family will engage with expert over spinal surgery review

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Bereaved family will engage with expert over spinal surgery review

Taoiseach attends The Mobius opening

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Statutory inquiry into spinal surgeries not ruled out by Taoiseach

HSE Temple Street spinal surgery review

Advocates say taskforce should take over the management of spinal surgical lists

Procedures for children with scoliosis and spina bifida should be managed by an agency outside the HSE, advocacy groups say

Fri, 29 Sep, 2023

New National Childrens Hospital to cost more than 1.43 billion euro

Assessment of new Children’s Hospital plan 'could take up to three months'

The continued uncertainty comes against a backdrop of serious safety concerns around some spinal surgery for children with spina bifida at Temple St.

Tue, 26 Sep, 2023

Children's Health Ireland reps to face Oireachtas committee over spinal surgery controversy

Children's Health Ireland reps to face Oireachtas committee over spinal surgery controversy

HSE to run an external review into problems identified with complex spinal surgery for children with spina bifida

Sat, 23 Sep, 2023

Patient groups says families may boycott HSE review of spinal surgery

Patient groups says families may boycott HSE review of spinal surgery

The Spina Bifida & Hydrocephalus Paediatric Advocacy Group and the Scoliosis Advocacy Network say they may not co-operate with the HSE external review into safety concerns around complex spinal surgery

Fri, 22 Sep, 2023

Scoliosis: 'There was no one to look at Brianna's back, and no one would tell us anything'

Scoliosis: 'There was no one to look at Brianna's back, and no one would tell us anything'

The mother of a nine-year-old girl with spina bifida and scoliosis waited months for updates on her treatment — and only discovered the reason for the hiatus in media reports this week

Fri, 22 Sep, 2023

Children with open sores and dislocated hips forced to wait four years for surgery

Children with open sores and dislocated hips forced to wait four years for surgery

Some 54 children have waited longer than one year for scoliosis surgery, despite funding of €19m last year to tackle scoliosis waiting lists

Thu, 29 Jun, 2023

Health Department will not reach surgery targets for children with spinal problems

Health Department will not reach surgery targets for children with spinal problems

In September, there were 214 children waiting for surgery to treat scoliosis alone in Irish hospitals

Wed, 09 Nov, 2022

Family of boy with spina bifida forced to fundraise and borrow for essential home renovations

Family of boy with spina bifida forced to fundraise and borrow for essential home renovations

Charity urges Department of Housing to adapt housing adaptation scheme to meet the needs of families and children with significant disabilities

Tue, 24 May, 2022

'These are not just files in Crumlin with someone's name on it, these are our kids'

'These are not just files in Crumlin with someone's name on it, these are our kids'

Advocacy group for children with spina bifida and hydrocephalus highlights the long wait times for surgeries

Thu, 03 Feb, 2022

Children with spina bifida losing ability to walk while on 'abhorrent waiting lists'

Children with spina bifida losing ability to walk while on 'abhorrent waiting lists'

Parents are calling on Health Minister Stephen Donnelly for long-promised improvements to care for children with neural tube defects

Tue, 16 Nov, 2021

Wednesday TV Tips: I thought I'd go to prison — the whistleblower who spoke out against sexual violence

Wednesday TV Tips: I thought I'd go to prison — the whistleblower who spoke out against sexual violence

— Slow down and enjoy food with Donal Skehan's new show; meet the primary teacher who buys so many clothes she needs two rooms for them all; catch up with families who featured in The Rotunda; and the Special Forces: Ultimate Hell Week finale

Wed, 13 Oct, 2021

Meet Mylo: A new kids' book highlights abilities and raises awareness of Spina Bifida

Meet Mylo: A new kids' book highlights abilities and raises awareness of Spina Bifida

Meet Mylo is the first in a series of short stories supporting children living with spina bifida and/or hydrocephalus

Tue, 12 Oct, 2021

Video: A Christmas wish came true for brave teen who has spent his life battling illness

Video: A Christmas wish came true for brave teen who has spent his life battling illness

Inspirational Cathal O’Neill, who was born with Spina Bifida and is a wheelchair user, has made no secret in the past of his ambitions to become a radio star.

Sat, 29 Dec, 2018

Irish ultra-athlete ran 24 marathons in 24 days and raised €142k

Irish ultra-athlete ran 24 marathons in 24 days and raised €142k

A documentary film featuring an ultra-athlete’s incredible 24 marathons in 24 days fundraising run around Ireland has its television premiere next week.

Fri, 02 Nov, 2018