'These are not just files in Crumlin with someone's name on it, these are our kids'

Jodie Lynch, from Cork, is waiting years for essential treatment.

An advocacy group for children with spina bifida and hydrocephalus has launched a website to highlight the “páistí in pain” around the country, who are waiting years for orthopaedic and urology surgeries for disabilities which become more painful and inoperable by the day.

One of those children is 13-year-old Jodie Lynch from Cork. Jodie has spina bifida and hydrocephalus and has been waiting over a year and a half to see a neurologist in Cork University Hospital for her epilepsy and two years for urology procedures.