Skyclarys: Senior Fianna Fáil members urge Government to overrule HSE on life-saving drug

Cork dad Craig Coady lost his son Rory (13) to Friedrich’s ataxia in September. His 16-year-old son, Paudie, also has the condition.

Craig Coady speaking with Deirdre O’Shaughnessy in the 'Irish Examiner' podcast studio. See links below. Picture Chani Anderson

A majority of the Fianna Fáil parliamentary party, including a junior minister, have written to Government leaders to reject the findings of the HSE drugs group on the Skyclarys drug.

They have also described the country's drug reimbursement scheme as "not fit for purpose".