New Cystic Fibrosis drug was 'like winning Lotto' for Jillian
Jillian McNulty, 39, from Longford Town, had access to the drug on a two-year trial basis and said that she went from having severely reduced lung function, no energy, and a need for regular daily three-to-four-hour naps, to living a normal and full life.
“I have not been in hospital for 11 months now. Prior to Orkambi, my average hospital stay was six to seven weeks, with one stay lasting 13-and-a-half weeks. Between the ages of 31 and 37, I really started to go downhill and was in and out of hospital all the time. Things were getting pretty bleak and I was getting closer and closer to transplant.
