Organisation: NPCE

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Organisation: NPCE

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

My cystic fibrosis is worsening every day that I don’t have Orkambi drug

My cystic fibrosis is worsening every day that I don’t have Orkambi drug

The word ‘Orkambi’ means nothing to most people. To anyone who has cystic fibrosis, it’s a pot of gold at the end of therainbow.

Fri, 08 Jan, 2016

New Cystic Fibrosis drug was 'like winning Lotto' for Jillian

New Cystic Fibrosis drug was 'like winning Lotto' for Jillian

A cystic fibrosis (CF) sufferer whose life has been transformed by a breakthrough drug known as Orkambi is calling on the Government and the HSE to fund it.

Tue, 08 Dec, 2015