epidermolysis bullosa

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

Charity calls for €1m a year investment for patients with 'butterfly disease'

Debra Ireland supports people who suffer from epidermolysis bullosa, a genetic condition that causes skin to blister at the slightest touch

Thu, 30 Jun, 2022

Friday TV Tips: 80 birthday candles for President Michael D Higgins

— and Kathy Bates tries to master the Ballyfermot accent

Fri, 16 Apr, 2021

Johnny Sexton discusses fame and pain with Claudia, 14

DEBRA Ireland ambassador Johnny Sexton recently sat down with 14-year-old Claudia Scanlon for an interview during EB Week.

Tue, 23 Oct, 2018

Running Debra’s Mini Marathon to remember Lola

Lola’s parents were told that she had the severest form of EB and would live for only nine to 12 months. She died in November at seven months and one day old.

Fri, 28 Apr, 2017

Little Casey is happy despite the pain from a rare skin condition

Casey Connors suffers from epidermolysis bullosa. Her skin is so fragile, it blisters at the slightest touch. 

Sat, 12 Mar, 2016