Running Debra’s Mini Marathon to remember Lola

Lola’s parents were told that she had the severest form of EB and would live for only nine to 12 months. She died in November at seven months and one day old.

JUST two days ago, María Monzón Rosique and her partner Barry Flynn celebrated the first anniversary of the birth of their daughter Lola.

The couple’s precious only child died in November of a rare form of butterfly skin disease EB (epidermolysis bullosa).