What A Difference A Day Makes: Lorraine Desmond on raising children with CFC

Teacher at Our Lady of Good Counsel Special School and mum-of-three Lorraine Desmond tells Helen O’Callaghan about the day her two sons were diagnosed with a rare syndrome – and describes how it was a moment of disappointment but also resolution

Lorraine Desmond: "December 13 — the day our two- and three-year-old sons Alex and Rian were diagnosed with CFC (cardiofaciocutaneous) syndrome." Picture Dan Linehan

A Tuesday in December 2011, we had an appointment in CUMH with a professor of genetics from Dublin.

December 13 — the day our two- and three-year-old sons Alex and Rian were diagnosed with CFC (cardiofaciocutaneous) syndrome.