Living with MND: 'I’m determined to do as much as I can, for as long as I can'

In the short time since Ollie Johnston was diagnosed with MND, his mobility has significantly reduced, and he now relies on a walking frame. But it hasn’t stopped him from making travel plans — including a trip down Route 66

Ollie Johnston, with his wife Geraldine, was diagnosed with MND six months ago. Despite his symptoms progressing rapidly, he is determined to live life to the fullest.

Six months ago, Ollie Johnston noticed that his handwriting had started to become a bit sloppy. It was not a major concern, but it did seem odd. A couple of weeks later, he and his partner, now wife, Geraldine, went on holiday to Spain, and he found that his arms seemed to be losing strength, and he felt exhausted.

Upon his return, he saw his doctor, who couldn’t find anything wrong. But he wasn’t improving, so following a subsequent visit, he was referred for an MRI, which came back clear.