Joanne’s life story to hit the big screen

The capacity of the human spirit to triumph over even the most challenging of circumstances is often extraordinary — and deeply moving.

People who are born with a rare disease or illness have more than their fair share of challenges to contend with.

Not alone must they cope with the restrictions and problems created by their condition, but they also live with the knowledge that, because of the uniqueness of their condition, funding for research will be limited.