Letters to the editor: A thank you to an unsung hero
'I don’t know what we will do when we move on to adult services and we lose our paediatrician. It’s a huge fear.'
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SUBSCRIBEMy son Jack is in hospital and has been for over four months. It’s been a long and difficult admission with many trips to theatre and a couple of admissions to intensive care.
Jack is 17 and a half years old, he has Down syndrome and a rare autoinflammatory disease. He has severe/ profound intellectual disability and is non-verbal. He is a wheelchair user and has hugely complex medical needs. He requires 24-hour care. He is on 21 different medications and has been tube fed since birth.
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