'Friedreich’s Ataxia doesn’t wait': Cork father urges approval of drug as son’s condition deteriorates
Craig Coady holds a photograph of himself and Rory celebrating a sporting success. He said Rory’s memory gives him the strength to continue fighting for access to treatment for Paudie. Picture: Chani Anderson
Friedreich's Ataxia doesn’t wait, Craig Coady says, as he details the harrowing reality his family faces as they desperately wait for life-changing drug, Skyclarys, to be approved for use in Ireland.
Mr Coady, whose 16-year-old son Paudie suffers from the genetic condition, told The Deirdre O’Shaughnessy Podcast that following a recent meeting with Taoiseach Micheál Martin, he is hopeful the medicine will soon be greenlit.




