Cork dad may move to Latvia to get life-saving drug for surviving son

He already lost one son to Friedrich's ataxia — now Craig Coady says HSE drug group's Skyclarys deferral could force him to move to Latvia to get the drug for his other son

Craig Coady speaking on the Deirdre O’Shaughnessy Podcast. His son Rory died with Friedrich's ataxia, and Craig fears for the health of his other son, Paudie, who has the same condition. Picture Chani Anderson

A Cork father has said he may have to move his son to Latvia if the HSE does not approve the Skyclarys drug for Friedreich’s ataxia.

Craig Coady told the Irish Examiner that another delay to the drug’s authorisation could lead to further deterioration in his 16-year-old son Paudie’s condition, and he is now making alternative plans in case the drug approval is declined.