Friedreich’s ataxia patients worried if they will get drug treatment in 'timely fashion'

A clear timeline for when a new drug for Friedreich’s ataxia will reach patients is urgently needed with one Cork father fearing it could take many months.

It emerged this week the HSE expects to have reimbursement arrangements in place by October 1 for Skyclarys. However, the 200 patients affected do not know when it will reach them.

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