EB

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

Girl, 7, with rare skin disease stars in book explaining disorder to classmates

Maria Maciukas was born with the genetic disorder epidermolysis bullosa (EB), a condition also known as Butterfly Skin due to the fragility of patients’ skin

Sun, 28 Aug, 2022

Charity sees 300% increase in calls seeking emotional support

Debra Ireland chief executive Jimmy Fearon said 66% of the calls the team received between April 1 2020 and March 31 2021 were seeking emotional support

Sun, 24 Oct, 2021

Running Debra’s Mini Marathon to remember Lola

Lola’s parents were told that she had the severest form of EB and would live for only nine to 12 months. She died in November at seven months and one day old.

Fri, 28 Apr, 2017

Little Casey is happy despite the pain from a rare skin condition

Casey Connors suffers from epidermolysis bullosa. Her skin is so fragile, it blisters at the slightest touch. 

Sat, 12 Mar, 2016

EB

Girl, 7, with rare skin disease stars in book explaining disorder to classmates

Charity sees 300% increase in calls seeking emotional support

Running Debra’s Mini Marathon to remember Lola

Little Casey is happy despite the pain from a rare skin condition

Latest

Mick Clifford

EB

Girl, 7, with rare skin disease stars in book explaining disorder to classmates

Charity sees 300% increase in calls seeking emotional support

Running Debra’s Mini Marathon to remember Lola

Little Casey is happy despite the pain from a rare skin condition

Latest

Mick Clifford

Most Read