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duchenne muscular dystrophy

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'He had so many dreams': Tributes paid to teen who died from incurable condition

'He had so many dreams': Tributes paid to teen who died from incurable condition

16-year-old Archie Naughton passed away at the Mater Hospital in Dublin on Thursday.

Fri, 08 Jul, 2022

'We call it a living grief': Mother opens up about five-year-old son's fatal condition

'We call it a living grief': Mother opens up about five-year-old son's fatal condition

'Every night when I put Fionn to bed and he gives me a cuddle and a kiss, I think "When is going to be the last time he can raise his arms to me? When will be the last time that he can raise his head to give me a kiss by himself without needing help?"'

Thu, 09 Sep, 2021

Drug unavailable here ‘is the only bit of hope’ to keep Lewis walking

Drug unavailable here ‘is the only bit of hope’ to keep Lewis walking

Time for five-year-old Lewis Harte Walsh is precious. He has a rare muscle-wasting condition, called Duchenne muscular dystrophy (DMD).

Wed, 01 Mar, 2017