'We call it a living grief': Mother opens up about five-year-old son's fatal condition

Due to his condition, Fionn must spend a lot of time resting as his muscles tire easily. Picture: Fionn Brogan Trust/Facebook

"Mammy, can I walk into school without my powerchair so today I can be like everyone else?"

As children around the country excitedly returned to school last week, Maeve Brogan's heart was breaking as her five-year-old son, Fionn asked her this question.