If you were told you were eventually going to lose your sight, what would be on your 'must-see' list?
Nine-year-old Ben Pierce from Denton, Texas and his family have been devoting a whole lot of time to that very question.
Ben was born 17 weeks premature and was diagnosed with an eye disease called Retinopathy of Prematurity which will, sadly, cause him to lose his sight completely sometime in the next ten years.
Last year, Ben lost his peripheral vision and along with his parents, he sat down to make a list of all the things he wants to see before he loses his vision completely.
The aim is to create a bank of memories for Ben that he will have forever.
His list keeps on getting bigger but parents Kit and Heidi are doing everything in their power to make sure Ben sees and does as many things on the list over the next few months.
Included on the wish list is a trip to the Grand Canyon, a visit a farm, to see the Sistine Chapel, explore the Redwood Forests, snorkel, go to a toy factory and LOTS more.
You can check out the full bucket list here.
While Ben has been warned that not all of his wishes are likely to come true, his family - including his five brothers and sisters - are going to do everything in their power so that Ben can see as much as possible before his world goes dark.
So far, he’s been to the Grand Canyon, a chocolate factory and to Alaska to see the Aurora Borealis. In February, he’s heading to New Orleans for Mardi Gras but before that it’s off to Disney World.
His mother explains why this is so important for Ben and his family:
“One of his therapists explained that as he gets older it will be easier for him to describe things and interact with the sighted world if he has memories of things – like snow, she said, or the ocean or a mountain.”
"And of course beyond the practical logistics of it, we wanted to help Ben have the emotional experience of witnessing this wild and wonderful world!"