Grieving dad was quizzed about Social Protection benefit in 'accusing tone' after son's death
Michael Power and Maggie Butler with a photo of Alex, 14, in his room at their home in Killenaule, Co Tipperary. They cared for him until his death in October last year. Picture: Brendan Gleeson
Bereaved parents of a boy who required round-the-clock support for his disabilities lodged a complaint with the Department of Social Protection over how they were treated after his death ā a move that has prompted changes to staff training.
The Tipperary couple are now urging the Government to urgently address gaps in supports for carers that became starkly evident during the covid pandemic.
Maggie Butler and Michael Power looked after Alex, aged 14, in Killenaule until his death in October.
āHe touched so many people,ā his father said.
āWe didnāt really understand that ourselves until after he passed, and we heard so many stories about him and the people he touched.ā
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Ms Butler, who was named Tipperary Carer of the Year last year, explained some of the barriers they faced: āFive days after Alex passed away, I notified them [at the Department of Social Protection] and my husband notified them.
"Then Michael got a call to ask why was he only claiming for two children now when he was claiming for three all along."Ā
By then, Ms Butler had filled in multiple forms related to changes in benefits status. She said:Ā
The parents complained but were not satisfied with an initial response, and requested a recording of the call be heard by more senior staff.
On Friday, they received a second, more lengthy, response.

A senior official said discussions were held with the staff member regarding her ātone and wordingā.
The woman was asked to review all the customerās information before making calls, and to communicate āin a manner that is always considerate and respectfulā.
In addition, a training session will run for that unit āin order to prevent anything like this happening in the future, and to improve the standard of service that we provideā.
Mr Power welcomed this move, saying:Ā
On Tuesday, they joined fellow bereaved families and the advocacy group Care Champions outside the DƔil to mark six years since pandemic lockdowns began in residential centres and nursing homes.
āThings have to change for carers,ā Ms Butler said.
āThe whole system has to change. When covid hit and people couldnāt work, they deemed that ā¬350 was a living wage for anyone out of work.
āAt that time, the carersā payment was ā¬204.ā
The familyās last electricity bill when Alex was alive was over ā¬1,000. This dropped to ā¬190 after his death, pointing to one example of the hidden costs facing carers.
Majella Beattie, the co-founder of the group, said: āCare Champions hear it constantly, while protecting the system is necessary, carers are being treated like suspects rather than equals.Ā
"It is heartbreaking that people like Michael and Maggie, who save the State millions, are met with suspicion and disrespect by the very system meant to help them.
āWe are gathering to honour those lost and affected through a memorial service, a reading of names, and shared testimony of present and continuing failures in care starting at 11am.ā
- Niamh Griffin, Health CorrespondentĀ





