Parents of boy with muscular dystrophy to hold rally at Dáil to campaign for vital drug

Parents of boy with muscular dystrophy to hold rally at Dáil to campaign for vital drug

Archie Ennis: GoFundMe campaign has so far raised €600,000 for Archie’s treatment abroad, but it not even half of what he needs.

The mother of a child with a muscle-wasting disease is to hold a rally at the Dáil on Wednesday, urging the Government to support the introduction of a vital drug here that will help slow progression of the disease.

Archie Ennis, aged 8, from Dublin, was diagnosed with muscular dystrophy before Christmas — a condition that affects about 120 boys in Ireland. There is no cure for it.

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