Endometriosis advocacy group not consulted on new treatment framework

Roisin Shortall TD: 'Because the symptoms of Endo overlap with so many other conditions, there is a real danger of being misdiagnosed.'

The only advocacy group for endometriosis, a disease that affects up to 250,000 Irish women, was not consulted in setting up a new Government framework for the treatment, the Oireachtas Health Committee has heard.

Women can wait years for diagnosis despite crippling symptoms. That can lead to people fearing unemployment or being told they have irritable bowel syndrome and depression, the Endometriosis Association of Ireland (EAI) said.