Children with cystic fibrosis being used as pawns by pharma company, say doctors

Julie Bernard and her daughter Aisling, 10, from Raheny during a protest at Leinster House by cystic fibrosis families over continued exclusion of 35 children with CF from life-changing drug Kaftrio. Picture: Gareth Chaney/ Collins Photos

Sick children are being used like pawns by a pharmaceutical company trying to make more money from the HSE, a senior group of doctors working with cystic fibrosis sufferers said.

The HSE has been in negotiations since May with Vertex about giving access for a therapy called Kaftrio for 35 young children with a specific genetic condition.