HSE agrees to pay for medicine to treat rare condition

The HSE has agreed to pay for two children to receive the only medicine that can treat their rare disease.

They have been without the drug following a dispute over cost, but they and their families are overjoyed after the HSE said ‘yes’ to Vimizim.

“It is the most amazing news,” said Barbara Frow, whose daughter Grace, 10, along with Cezy Fosca, 12, stopped receiving the drug last month.