No reprieve for Respreeza patients

The decision not to reimburse people for a drug shown to slow the progress of genetic emphysema has been formally communicated by the HSE to the foundation representing patients affected.

The Alpha-One Foundation has called on Health Minister Simon Harris to reconsider the decision which it describes as a “devastating blow” to the estimated 60 patients who could, or, already have, benefited from Respreeza.

The notice to the foundation of the State’s refusal to reimburse the cost came on the same day that Mr Harris issued a statement in which he said it was “vital that we ensure patients have access to a sustainable supply of safe and effective medicines”.