Families in crisis over rare disorders

NEARLY three-quarters of families experience crises brought about by the pressure of caring for a loved one who suffers from a rare health disorder, a new report has found.

Feelings of isolation, financial pressures and other children being overlooked are some of the knock-on effects on families coping with a rare condition, the RehabCare study found.

Launching the report in Dublin, health chiefs, GPs and parents backed calls for a national centre to help people with rare conditions.