Managing the skin condition, EB, can be hard, but worth it

Kathleena Clancy suffers from a milder form of EB, which creates sores and blisters on her leg, but is robust and clever, says mother Tina.

Kathleena Clancy’s parents knew she had painful skin condition EB before they adopted her from Wuhan.

Here Tina Tully tells Helen O’Callaghan about adopting their “strong-willed, funny, hugely empathetic” daughter and about managing a condition that can leave the toddler with blistering wounds.