Online Lives: Meet Evie Evans Nevin

Evie Evans Nevin is a former journalist who blogs about living with a genetic condition called Ehlers Danlos syndrome (EDS) on thezebramom.com, writes Denise O’Donoghue.

She was diagnosed in 2013 with a group of disorders that affect connective tissues and the name of her blog is a nod to the zebra as a symbol of rare diseases.

Her two children also live with the same chronic illness. Evie has found blogging helps her deal with her own situation. “Since I can’t work anymore, blogging allows me to keep my skills sharp. I have to do a lot of research and I often interview guest bloggers, something I would have done in my career,” she said.