'You grieve for the child you thought you were going to have' - Johanne Powell talks about life as a carer
Mrs Powell explained the difficulties associated with bringing up a child with disabilities and the dashed dreams you must grieve for the child "you thought you were going to have."
Johanne, and her husband Alan, who are now in their 60’s, appeared in an Irish Times feature last week discussing the exhaustion, depression and boredom they have experienced as full time carers for their daughter Siobhan who suffers from a rare genetic condition of ring chromosome 8.

