Meet the heroic children with Epidermolysis Bullosa described as 'the worst thing you could live with'

Ailín Quinlan meets the brave children with Epidermolysis Bullosa – an incurable and extremely painful skin condition that a medical expert describes as “the worst thing you could live with”
Meet the heroic children with Epidermolysis Bullosa described as 'the worst thing you could live with'

LITTLE Casey Connors lives a nightmare. Just four years old, she’s covered from the neck down in open wounds, and bandaged from head to toe.

She is unable to cycle a bike or run and play like other children her age, because if she fell, or if someone bumped into her, her skin could tear, causing more wounds.

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