VIDEO: Meath parents make heartbreaking appeal on US TV to help save their son
Cian McDonnell-Lynch, from Carlanstown in Co Meath, suffers from dyskeratosis congenita, a rare bone marrow failure syndrome that affects only about one in one million people. He’s now desperately in need of lung transplant because he also has microscopic pulmonary arteriovenous malformation, which is linked to his condition.
The little boy’s family have travelled to Boston after being given the devastating news that Cian may not survive until Christmas without a transplant.
