Campaigner Vera Twomey: Little Ava now free of pharma

Campaigner Vera Twomey: Little Ava now free of pharma
Vera Twomey and her ddaughter Ava pictured in 2017

By Olivia Kelleher

Medicinal cannabis campaigner Vera Twomey, who secured a licence for the medication for her ill daughter Ava Barry, has said the eight-year-old is now pharmaceutical free.

In a post on Facebook Ms Twomey says the child is solely being treated by medicinal cannabis CBD and THC.

“Ava has become officially pharma free. We were scared and excited at the same time to know what it would bring. The last couple of photos of Ava I think speak for themselves and as it happens so does Ava as she is singing the beginning of nursery rhymes now more and more.

Happy and healthy as we can be, we move forward better and brighter and [with Ava] looking forward to getting back to school.

Ms Twomey spoke in the the House of Commons in London earlier this summer where she explained the benefits of the alternative medicine in treating conditions such as severe epilepsy.

She became friendly with British mother Hannah Deacon when they lived on the same street in the Netherlands when they were both “medical refugees”.

She was in the Hague to receive medicinal cannabis for her daughter Ava while Hannah was in the same position with her son Alfie Dingley.

Ms Twomey from Aghabullogue, Co Cork, rose to national prominence in a three-year campaign to secure access to medicinal cannabis to treat Ava’s rare form of epilepsy called Dravet syndrome. Her campaigning included two 260km walks from Cork to the Dáil to capture the Government’s attention. She also mounted a social media campaign. She and husband Paul had to live abroad with Ava to guarantee THC cannabis supply.

Ms Twomey says she continues to campaign for others who are in need of medicinal cannabis. She recently climbed Croagh Patrick with Noreen O’Neill from Co Kerry, who is hoping to get a licence for medicinal cannabis for her two-year-old son Michael.

Michael has a neurological condition called bilateral frontal polymicrogyric.

- Ms O’Neill has set up a petition seeking the legalisation of medicinal cannabis: www.change.org/p/simon-harris-minister-for-health-simon-harris-legalise-medicinal-cannabis- in-ireland-now

More on this topic

Medical cardholders in poorest households spend 10% of income on private health insuranceMedical cardholders in poorest households spend 10% of income on private health insurance

Cancer patient vows to keep fighting to end  practice of reviewing medical cards of terminally ill patientsCancer patient vows to keep fighting to end practice of reviewing medical cards of terminally ill patients

HSE clarification on medical cards for terminally ill patients welcomed by Irish Hospice FoundationHSE clarification on medical cards for terminally ill patients welcomed by Irish Hospice Foundation

Top-earning GP received €1.1m from medical cardsTop-earning GP received €1.1m from medical cards


More in this Section

Deal creating EU border in Irish Sea closerDeal creating EU border in Irish Sea closer

The key players in the UK’s hunt for a Brexit dealThe key players in the UK’s hunt for a Brexit deal

Talk of Northern Ireland-only backstop off the mark – Arlene FosterTalk of Northern Ireland-only backstop off the mark – Arlene Foster

Limerick IT and Athlone IT forming consortium to develop Technological UniversityLimerick IT and Athlone IT forming consortium to develop Technological University


Lifestyle

Munster offers so many hidden gems with bargains, ideas and must-have products for the interiors enthusiast who is always on the lookout for something new, writes Carol O’Callaghan.Made in Munster: So many treasure troves for the interiors enthusiast

Aileen Lee in conversation with ceramist Hedi O'Neill.Made in Munster: 'My advice? Be free in your style’ - Ceramist Hedi O'Neill

Red lips are hot for autumn but can you make them part of your everyday makeup? Rachel Marie Walsh thinks so.Code red: Making a statement with red lipstick for the everyday look

Welcome to the Autumn/Winter edition of ieStyle.Don't miss the Irish Examiner's free glossy 'ieStyle' magazine

More From The Irish Examiner