Fergus Finlay: The Before we Die campaigners are resolute — because they have no choice
Older parents of children with an intellectual disability want to know who will look after their children when they are no longer able to do so
Founder of Before We Die Tony Murray, with his wife Susan and their 42-year-old daughter Aoife who has an intellectual disability and is cared for full-time by her parents. Picture: Moya Nolan
Fergus Finlay is a former political activist and adviser to three governments, the former head of the children's charity Barnardos, a writer and a broadcaster.
I turned up at The Helix auditorium in Glasnevin last Saturday morning for a meeting about intellectual disability.
I’ve been doing that most of my life, working with and supporting campaign groups trying to raise awareness, trying to impress politicians and governments about the urgency of the situation facing individuals and families.
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