A raw deal for CF patients

To find out at three-weeks old that your perfect newborn child has cystic fibrosis is devastating.

It is a life-threatening, ruthless disease that has the people who live with it on a daily basis fighting to stay healthy with a battery of pills for nearly every organ to keep them working, and a nebuliser to help the lungs. And then there’s the physio and other medicines.

What is a common cold to the most of us can send a person with CF into hospital on IVs for a number of weeks. Unfortunately, a hospital these days is the most dangerous place for a person with CF, as the facilities in Ireland are completely substandard.